Publications

Home » About » Publications

McDonald, K., Banzer, E., Cooley, M., Singhal, R., Goode, T.G., Kiryluk, K., Sabatello, M., & The Project ENGAGE Consortium (online first). “I Make My Own Decisions”: Views on Precision Medicine Research Participation Decisions from Adults with Intellectual Disability. Human Genetic and Genomics Advances. [Link](opens in new tab)

McDonald, K., Olick, R.S., Dinerstein, R., Mulcahy, D.T., Cooley, M., Banzer, E., Sabatello, M. & The Project ENGAGE Consortium (accepted). Adults with intellectual disability and consent to precision medicine research: Using supported decision-making to enhance consent capacity. Journal of Law, Medicine & Ethics. [Link](opens in new tab)

Sabatello, M., Cooley, M., Banzer, E., Lewis V, C., Goode, T., Kiryluk, K., McDonald, K. & The Project ENGAGE Consortium (in press). “It is important to me to know where the information is going”: Views of adults with intellectual disability on data sharing in precision medicine research. Genetics in Medicine. [Link](opens in new tab)

Beck, KB, MacKenzie, KT, Kirby, AV, McDonald, KE, Moura, I, KE, Rutenberg E, Kumar, T, Mancino, J, Sabatello, M, Roth, S, Nicolaidis, C, & the Working to increase Inclusivity in Research Ethics (WIRE). (online first). Guidelines for the creation of accessible consent materials and procedures: lessons from research with autistic people and people with intellectual disability. Autism in Adulthood. [Link](opens in new tab)

Sabatello, M. & McDonald, K. (2025). Team science in precision medicine research: The case for inclusion of adults with intellectual disability. American Journal on Intellectual and Developmental Disabilities, 130, 171-177. [Link to PubMed](opens in new tab)

Eitenberger, M, Baugh, M, McDonald, KE, & Sabatello, M. (2025). Beyond individual responsibility: Group harms in genomic (data-centric) research ethics require structural, justice-oriented solutions. American Journal of Bioethics. [Link](opens in new tab)

Sabatello, M. & McDonald, K. (2024). Invisible: People with disability and (in)equity in precision medicine research. The American Journal of Bioethics, 24(3), 103-106. [Link to PubMed](opens in new tab)